# Informal Carer - Clinical Note Document v26.0.0

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# Clinical Note Document

26.0.0
AU

*  [FHIR IGs](https://implementer.digitalhealth.gov.au/fhir-resources) 
*  [Implementer Hub](https://implementer.digitalhealth.gov.au/) 
*  [Agency site](https://www.digitalhealth.gov.au) 

* [**Table of Contents**](toc.md)
* [**FHIR Artefacts**](fhir-artefacts.md)
* [**Artefacts Summary**](artifacts.md)
* **Informal Carer**

## Extension: Informal Carer 

| | |
| :--- | :--- |
| *Official URL*:http://digitalhealth.gov.au/fhir/cnd/StructureDefinition/informal-carer | *Version*:26.0.0 |
| Active as of 2026-06-19 | *Computable Name*:InformalCarer |
| **Copyright/Legal**: This content is licensed under a Creative Commons Attribution 4.0 International License. See [https://creativecommons.org/licenses/by/4.0/](https://creativecommons.org/licenses/by/4.0/) | |

This extension can be used to represent information about an informal carer of a patient. An informal carer includes any person, such as a family member, friend or neighbour, who is giving regular, ongoing assistance to another person. This may provide healthcare providers with additional information on the patients support system and identified contact person. The definition for the patient’s informal carer existence indicator is the same described in the [definition section](https://meteor.aihw.gov.au/content/787901) of the NMDS. Additionally, this extension allows for the representation of the carer information.

This extension supports the capture of informal carer information for a patient in a Clinical Note Document context, enabling healthcare providers to record the existence and details of informal carers such as family members, friends, or neighbours who provide regular ongoing assistance, in alignment with the AIHW NMDS informal carer existence indicator definition.

**Context of Use**

**Usage info**

**Usages:**

* Use this Extension: [CND Patient](StructureDefinition-cnd-patient.md)
* Examples for this Extension: [Bundle/ex-bundle-anne](Bundle-ex-bundle-anne.md), [Patient/ex-patient-anne](Patient-ex-patient-anne.md) and [Patient/ex-patient-smith](Patient-ex-patient-smith.md)

You can also check for [usages in the FHIR IG Statistics](https://packages2.fhir.org/xig/resource/au.gov.digitalhealth.cnd|current/StructureDefinition/StructureDefinition-informal-carer.json)

### Formal Views of Extension Content

 [Description of Profiles, Differentials, Snapshots, and how the XML and JSON presentations work](http://build.fhir.org/ig/FHIR/ig-guidance/readingIgs.html#structure-definitions). 

 

Other representations of profile: [CSV](StructureDefinition-informal-carer.csv), [Excel](StructureDefinition-informal-carer.xlsx), [Schematron](StructureDefinition-informal-carer.sch) 

#### Terminology Bindings

#### Constraints

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IG © 2026+ [Australian Digital Health Agency](https://www.digitalhealth.gov.au). Package au.gov.digitalhealth.cnd#26.0.0 based on [FHIR 4.0.1](http://hl7.org/fhir/R4/). Generated 2026-06-19

Links: [Table of Contents](toc.md) | [QA Report](qa.md) | [Version History](https://fhir.digitalhealth.gov.au/dh/history.html) | [Report an issue or propose a change](mailto:help@digitalhealth.gov.au) 

Publisher: [Australian Digital Health Agency](https://www.digitalhealth.gov.au) | ABN: 84 425 496 912, Level 25, 175 Liverpool Street, Sydney, NSW 2000 | Phone: [1300 901 001](tel:1300901001) | Email: [help@digitalhealth.gov.au](mailto:help@digitalhealth.gov.au) | [https://www.digitalhealth.gov.au](https://www.digitalhealth.gov.au) | [Privacy policy](https://www.digitalhealth.gov.au/about-us/policies-privacy-and-reporting/privacy-policy) | [Terms of Use](https://www.digitalhealth.gov.au/about-us/policies-privacy-and-reporting/terms-of-use)

![](cc0.png)
The Australian Digital Health Agency acknowledges the Traditional Custodians of Country throughout Australia, and their continuing connection to land, sea and community. We pay our respects to them and their cultures, and to Elders, past and present.



## Resource Content

```json
{
  "resourceType" : "StructureDefinition",
  "id" : "informal-carer",
  "url" : "http://digitalhealth.gov.au/fhir/cnd/StructureDefinition/informal-carer",
  "version" : "26.0.0",
  "name" : "InformalCarer",
  "title" : "Informal Carer",
  "status" : "active",
  "experimental" : false,
  "date" : "2026-06-19T14:17:49+10:00",
  "publisher" : "Australian Digital Health Agency",
  "contact" : [{
    "name" : "Australian Digital Health Agency",
    "telecom" : [{
      "system" : "url",
      "value" : "https://www.digitalhealth.gov.au"
    },
    {
      "system" : "email",
      "value" : "help@digitalhealth.gov.au"
    }]
  },
  {
    "name" : "Australian Digital Health Agency",
    "telecom" : [{
      "system" : "email",
      "value" : "help@digitalhealth.gov.au",
      "use" : "work"
    }]
  }],
  "description" : "This extension can be used to represent information about an informal carer of a patient. An informal carer includes any person, such as a family member, friend or neighbour, who is giving regular, ongoing assistance to another person. This may provide healthcare providers with additional information on the patients support system and identified contact person. The definition for the patient’s informal carer existence indicator is the same described in the [definition section](https://meteor.aihw.gov.au/content/787901) of the NMDS. Additionally, this extension allows for the representation of the carer information.",
  "jurisdiction" : [{
    "coding" : [{
      "system" : "urn:iso:std:iso:3166",
      "code" : "AU",
      "display" : "Australia"
    }]
  }],
  "purpose" : "This extension supports the capture of informal carer information for a patient in a Clinical Note Document context, enabling healthcare providers to record the existence and details of informal carers such as family members, friends, or neighbours who provide regular ongoing assistance, in alignment with the AIHW NMDS informal carer existence indicator definition.",
  "copyright" : "This content is licensed under a Creative Commons Attribution 4.0 International License. See [https://creativecommons.org/licenses/by/4.0/](https://creativecommons.org/licenses/by/4.0/)",
  "fhirVersion" : "4.0.1",
  "mapping" : [{
    "identity" : "rim",
    "uri" : "http://hl7.org/v3",
    "name" : "RIM Mapping"
  }],
  "kind" : "complex-type",
  "abstract" : false,
  "context" : [{
    "type" : "element",
    "expression" : "Patient"
  }],
  "type" : "Extension",
  "baseDefinition" : "http://hl7.org/fhir/StructureDefinition/Extension",
  "derivation" : "constraint",
  "differential" : {
    "element" : [{
      "id" : "Extension",
      "path" : "Extension",
      "short" : "Informal Carer",
      "definition" : "This extension can be used to represent information about an informal carer of a patient. An informal carer includes any person, such as a family member, friend or neighbour, who is giving regular, ongoing assistance to another person. This may provide healthcare providers with additional information on the patients support system and identified contact person. The definition for the patient’s informal carer existence indicator is the same described in the [definition section](https://meteor.aihw.gov.au/content/787901) of the NMDS. Additionally, this extension allows for the representation of the carer information.",
      "constraint" : [{
        "key" : "inv-01-carer-indicator-error",
        "severity" : "error",
        "human" : "If indicator is not 'Yes', then no carers SHALL be provided.",
        "expression" : "extension.where(url = 'indicator').value.coding.where(system = 'http://snomed.info/sct' and code = '373066001').empty() implies extension.where(url = 'carer').empty()",
        "source" : "http://digitalhealth.gov.au/fhir/cnd/StructureDefinition/informal-carer"
      },
      {
        "key" : "inv-02-carer-indicator-warning",
        "severity" : "warning",
        "human" : "If indicator is 'Yes', then at least one carer SHOULD be provided.",
        "expression" : "extension.where(url = 'indicator').value.coding.where(system = 'http://snomed.info/sct' and code = '373066001').exists() implies extension.where(url = 'carer').value.exists()",
        "source" : "http://digitalhealth.gov.au/fhir/cnd/StructureDefinition/informal-carer"
      }]
    },
    {
      "id" : "Extension.extension",
      "path" : "Extension.extension",
      "min" : 1
    },
    {
      "id" : "Extension.extension:indicator",
      "path" : "Extension.extension",
      "sliceName" : "indicator",
      "min" : 1,
      "max" : "1",
      "mustSupport" : true
    },
    {
      "id" : "Extension.extension:indicator.extension",
      "path" : "Extension.extension.extension",
      "max" : "0"
    },
    {
      "id" : "Extension.extension:indicator.url",
      "path" : "Extension.extension.url",
      "fixedUri" : "indicator"
    },
    {
      "id" : "Extension.extension:indicator.value[x]",
      "path" : "Extension.extension.value[x]",
      "short" : "Informal carer existence indicator",
      "min" : 1,
      "type" : [{
        "code" : "CodeableConcept"
      }],
      "binding" : {
        "strength" : "required",
        "valueSet" : "http://digitalhealth.gov.au/fhir/cnd/ValueSet/informal-carer-existence-indicator-vs"
      }
    },
    {
      "id" : "Extension.extension:carer",
      "path" : "Extension.extension",
      "sliceName" : "carer",
      "min" : 0,
      "max" : "*",
      "mustSupport" : true
    },
    {
      "id" : "Extension.extension:carer.extension",
      "path" : "Extension.extension.extension",
      "max" : "0"
    },
    {
      "id" : "Extension.extension:carer.url",
      "path" : "Extension.extension.url",
      "fixedUri" : "carer"
    },
    {
      "id" : "Extension.extension:carer.value[x]",
      "path" : "Extension.extension.value[x]",
      "short" : "Informal carer details",
      "min" : 1,
      "type" : [{
        "code" : "Reference",
        "targetProfile" : ["http://hl7.org.au/fhir/StructureDefinition/au-relatedperson"]
      }]
    },
    {
      "id" : "Extension.url",
      "path" : "Extension.url",
      "fixedUri" : "http://digitalhealth.gov.au/fhir/cnd/StructureDefinition/informal-carer"
    },
    {
      "id" : "Extension.value[x]",
      "path" : "Extension.value[x]",
      "max" : "0"
    }]
  }
}

```
