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Extension: Informal Carer

Official URL: http://digitalhealth.gov.au/fhir/cnd/StructureDefinition/informal-carer Version: 26.0.0
Active as of 2026-06-19 Computable Name: InformalCarer

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This extension can be used to represent information about an informal carer of a patient. An informal carer includes any person, such as a family member, friend or neighbour, who is giving regular, ongoing assistance to another person. This may provide healthcare providers with additional information on the patients support system and identified contact person. The definition for the patient’s informal carer existence indicator is the same described in the definition section of the NMDS. Additionally, this extension allows for the representation of the carer information.

This extension supports the capture of informal carer information for a patient in a Clinical Note Document context, enabling healthcare providers to record the existence and details of informal carers such as family members, friends, or neighbours who provide regular ongoing assistance, in alignment with the AIHW NMDS informal carer existence indicator definition.

Context of Use

    This extension may be used on the following element(s)

Usage info

Usages:

You can also check for usages in the FHIR IG Statistics

Formal Views of Extension Content

Description of Profiles, Differentials, Snapshots, and how the XML and JSON presentations work.

This structure is derived from Extension

NameFlagsCard.TypeDescription & Constraints    Filter: Filtersdoco
.. Extension C 0..* Extension Informal Carer
Constraints: inv-01-carer-indicator-error, inv-02-carer-indicator-warning
... extension 1..* Extension Extension
... Slices for extension Content/Rules for all slices
.... extension:indicator S 1..1 Extension Extension
..... extension 0..0 Extension
..... url 1..1 uri "indicator"
..... value[x] 1..1 CodeableConcept Informal carer existence indicator
Binding: Informal Carer Existence Indicator (required)
.... extension:carer S 0..* Extension Extension
..... extension 0..0 Extension
..... url 1..1 uri "carer"
..... value[x] 1..1 Reference(AU Base RelatedPerson) Informal carer details
... url 1..1 uri "http://digitalhealth.gov.au/fhir/cnd/StructureDefinition/informal-carer"

doco Documentation for this format
NameFlagsCard.TypeDescription & Constraints    Filter: Filtersdoco
.. Extension C 0..* Extension Informal Carer
Constraints: inv-01-carer-indicator-error, inv-02-carer-indicator-warning
... id 0..1 string Unique id for inter-element referencing
... Slices for extension 1..* Extension Extension
Slice: Unordered, Open by value:url
.... extension:indicator S 1..1 Extension Extension
..... id 0..1 string Unique id for inter-element referencing
..... extension 0..0 Extension
Slice: Unordered, Open by value:url
..... url 1..1 uri "indicator"
..... value[x] 1..1 CodeableConcept Informal carer existence indicator
Binding: Informal Carer Existence Indicator (required)
.... extension:carer S 0..* Extension Extension
..... id 0..1 string Unique id for inter-element referencing
..... extension 0..0 Extension
Slice: Unordered, Open by value:url
..... url 1..1 uri "carer"
..... value[x] 1..1 Reference(AU Base RelatedPerson) Informal carer details
... url 1..1 uri "http://digitalhealth.gov.au/fhir/cnd/StructureDefinition/informal-carer"

doco Documentation for this format

This structure is derived from Extension

Summary

Complex Extension: This extension can be used to represent information about an informal carer of a patient. An informal carer includes any person, such as a family member, friend or neighbour, who is giving regular, ongoing assistance to another person. This may provide healthcare providers with additional information on the patients support system and identified contact person. The definition for the patient’s informal carer existence indicator is the same described in the definition section of the NMDS. Additionally, this extension allows for the representation of the carer information.

  • indicator: CodeableConcept: An Extension
  • carer: Reference: An Extension

Differential View

This structure is derived from Extension

NameFlagsCard.TypeDescription & Constraints    Filter: Filtersdoco
.. Extension C 0..* Extension Informal Carer
Constraints: inv-01-carer-indicator-error, inv-02-carer-indicator-warning
... extension 1..* Extension Extension
... Slices for extension Content/Rules for all slices
.... extension:indicator S 1..1 Extension Extension
..... extension 0..0 Extension
..... url 1..1 uri "indicator"
..... value[x] 1..1 CodeableConcept Informal carer existence indicator
Binding: Informal Carer Existence Indicator (required)
.... extension:carer S 0..* Extension Extension
..... extension 0..0 Extension
..... url 1..1 uri "carer"
..... value[x] 1..1 Reference(AU Base RelatedPerson) Informal carer details
... url 1..1 uri "http://digitalhealth.gov.au/fhir/cnd/StructureDefinition/informal-carer"

doco Documentation for this format

Snapshot View

NameFlagsCard.TypeDescription & Constraints    Filter: Filtersdoco
.. Extension C 0..* Extension Informal Carer
Constraints: inv-01-carer-indicator-error, inv-02-carer-indicator-warning
... id 0..1 string Unique id for inter-element referencing
... Slices for extension 1..* Extension Extension
Slice: Unordered, Open by value:url
.... extension:indicator S 1..1 Extension Extension
..... id 0..1 string Unique id for inter-element referencing
..... extension 0..0 Extension
Slice: Unordered, Open by value:url
..... url 1..1 uri "indicator"
..... value[x] 1..1 CodeableConcept Informal carer existence indicator
Binding: Informal Carer Existence Indicator (required)
.... extension:carer S 0..* Extension Extension
..... id 0..1 string Unique id for inter-element referencing
..... extension 0..0 Extension
Slice: Unordered, Open by value:url
..... url 1..1 uri "carer"
..... value[x] 1..1 Reference(AU Base RelatedPerson) Informal carer details
... url 1..1 uri "http://digitalhealth.gov.au/fhir/cnd/StructureDefinition/informal-carer"

doco Documentation for this format

This structure is derived from Extension

Summary

Complex Extension: This extension can be used to represent information about an informal carer of a patient. An informal carer includes any person, such as a family member, friend or neighbour, who is giving regular, ongoing assistance to another person. This may provide healthcare providers with additional information on the patients support system and identified contact person. The definition for the patient’s informal carer existence indicator is the same described in the definition section of the NMDS. Additionally, this extension allows for the representation of the carer information.

  • indicator: CodeableConcept: An Extension
  • carer: Reference: An Extension

 

Other representations of profile: CSV, Excel, Schematron

Terminology Bindings

Path Status Usage ValueSet Version Source
Extension.extension:indicator.​value[x] Base required Informal Carer Existence Indicator 📦26.0.0 This IG

Constraints

Id Grade Path(s) Description Expression
ele-1 error **ALL** elements All FHIR elements must have a @value or children hasValue() or (children().count() > id.count())
ext-1 error **ALL** extensions Must have either extensions or value[x], not both extension.exists() != value.exists()
inv-01-carer-indicator-error error Extension If indicator is not 'Yes', then no carers SHALL be provided. extension.where(url = 'indicator').value.coding.where(system = 'http://snomed.info/sct' and code = '373066001').empty() implies extension.where(url = 'carer').empty()
inv-02-carer-indicator-warning warning Extension If indicator is 'Yes', then at least one carer SHOULD be provided. extension.where(url = 'indicator').value.coding.where(system = 'http://snomed.info/sct' and code = '373066001').exists() implies extension.where(url = 'carer').value.exists()