| Australian Digital Health Agency FHIR Implementation Guide 1.0.0

Australian Digital Health Agency FHIR Implementation Guide. This is the current published version. It is based on FHIR® version 4.0.1. See the Directory of published versions for a list of available versions.

### StructureDefinition: ADHA Record of Consent from Australian Organ Donor Register [Active]

The purpose of this profile is to define a representation of a record of organ and tissue donation decision held by the Australian Organ Donor Register for the electronic exchange of digital health information between individuals, healthcare providers, and the My Health Record system infrastructure in Australia.

This profile identifies the additional constraints, extensions, and value sets that build on and extend Consent that are supported.

This profile is designed to set a Consent standard for:

- Query for a record of consent from the Australian Organ Donor Register associated with a patient
- Record or update a record of consent from the Australian Organ Donor Register associated with a patient

#### Profile specific guidance

- An individual’s decision not to be a donor is represented as `Consent.provision.type` = “deny”, see example Australian Organ Donor Register Consent - Not willing to be a donor.
- An individual’s decision to be a donor is represented as `Consent.provision.type` = “permit” and the resource SHALL include the full set of child provisions representing the individual’s decision with respect to each potential organ and/or tissue for transplantation:
  - the set of potential organ and/or tissue for transplantation is defined by the Organ Donation Body Site value set.
  - a decision to donate all is represented as instantiating each specific `Consent.provision.provision` with `Consent.provision.provision.type` = “permit”, see example Australian Organ Donor Register Consent - Willing to be a donor, donate all.
  - a decision to donate certain organs and/or tissues is represented as:
    - a recorded consent to donate a specific organ and/or tissue is represented as `Consent.provision.provision` with `Consent.provision.provision.type` = “permit”.
    - no evidence of consent to donate a specific organ and/or tissue (or evidence an individual does not consent) is represented as `Consent.provision.provision` with `Consent.provision.provision.type` = “deny”.
    - see example Australian Organ Donor Register Consent - Willing to be a donor, donate specific tissue / organ.
- In an exchange with the My Health Record system references to a BodyStructure resource will be contained.

#### Boundaries and relationships

This profile is not referenced by another profile in this implementation guide.

#### Formal Views of Profile Content

The official URL for this profile is:

    http://ns.electronichealth.net.au/fhir/StructureDefinition/dh-consent-aodr-1

The purpose of this profile is to define a representation of a record of organ and tissue donation decision held by the Australian Organ Donor Register for the electronic exchange of digital health information between individuals, healthcare providers, and the My Health Record system infrastructure in Australia.

This profile builds on Consent.

This profile was published on 2023-04-14 04:02:01+0000 as a active by Australian Digital Health Agency.

Description of Profiles, Differentials, Snapshots, and how the XML and JSON presentations work.

- Differential Table
- Snapshot Table
- All

Name | Flags | Card. | Type | Description & Constraints
--- | --- | --- | --- | ---
Consent |  | 0..* | Consent | Record of organ and tissue donation decision held by the Australian Organ Donor Register
Slices for extension |  | 0..* | Extension | Extension Slice: Unordered, Open by value:url
dateInitialRegistration | S | 0..1 | dateTime | Date the individual first registered URL: http://ns.electronichealth.net.au/fhir/StructureDefinition/dh-date-initial-registration-1
identifier | S | 1..* | Identifier | Identifier for this record (external references)
status | S | 1..1 | code | draft | proposed | active | rejected | inactive | entered-in-error Fixed Value: active
scope | S | 1..1 | CodeableConcept | Which of the four areas this resource covers (extensible) Required Pattern: At least the following
coding |  | 1..* | Coding | Code defined by a terminology system Fixed Value: (complex)
system |  | 1..1 | uri | Identity of the terminology system Fixed Value: http://terminology.hl7.org/CodeSystem/consentscope
code |  | 1..1 | code | Symbol in syntax defined by the system Fixed Value: adr
Slices for category | S | 1..* | CodeableConcept | Classification of the consent statement - for indexing/retrieval Slice: Unordered, Open by pattern:$this
category:health |  | 1..1 | CodeableConcept | Consent for healthcare service, procedure, or activity Required Pattern: At least the following
coding |  | 1..* | Coding | Code defined by a terminology system Fixed Value: (complex)
system |  | 1..1 | uri | Identity of the terminology system Fixed Value: http://loinc.org
code |  | 1..1 | code | Symbol in syntax defined by the system Fixed Value: 59284-0
category:aodr |  | 1..1 | CodeableConcept | Organ donation consent Required Pattern: At least the following
coding |  | 1..* | Coding | Code defined by a terminology system Fixed Value: (complex)
system |  | 1..1 | uri | Identity of the terminology system Fixed Value: http://loinc.org
code |  | 1..1 | code | Symbol in syntax defined by the system Fixed Value: 64300-7
patient | S C | 1..1 | Reference(ADHA Core Patient) | Who the consent applies to inv-dh-cons-aodr-01: At least reference or a valid identifier shall be present
dateTime | S C | 1..1 | dateTime | When this Consent was created or indexed inv-dh-cons-aodr-03: Date shall be at least to day
performer | S C | 1..1 | Reference(ADHA Core Patient) | Grantor of consent inv-dh-cons-aodr-04: At least reference or a valid identifier shall be present
organization | S C | 1..1 | Reference(ADHA Core Organization) | Custodian of the consent inv-dh-cons-aodr-05: At least reference or display or a valid identifier shall be present
policy | S | 1..1 | BackboneElement | Australian Organ Donor Register
authority | S | 0..1 | uri | Enforcement source for policy Fixed Value: http://australianorgandonorregister.gov.au
uri | S | 1..1 | uri | Specific policy covered by this consent Fixed Value: http://www.australianorgandonorregister.gov.au/aodr
provision | S C | 1..1 | BackboneElement | Individual's decision about donation inv-dh-cons-aodr-02: Specific provisions shall be specified if the individual is willing to donate, otherwise prohibited
type | S | 1..1 | code | deny | permit
action | S | 1..1 | CodeableConcept | Removal of organ or tissue for donation Required Pattern: At least the following
coding |  | 1..* | Coding | Code defined by a terminology system Fixed Value: (complex)
system |  | 1..1 | uri | Identity of the terminology system Fixed Value: http://snomed.info/sct
code |  | 1..1 | code | Symbol in syntax defined by the system Fixed Value: 53958007
provision | S | 0..* | BackboneElement | Individual's decision about donation of specific organ or tissue
type | S | 1..1 | code | deny | permit
action | S | 1..1 | CodeableConcept | Removal of organ or tissue for donation Required Pattern: At least the following
coding |  | 1..* | Coding | Code defined by a terminology system Fixed Value: (complex)
system |  | 1..1 | uri | Identity of the terminology system Fixed Value: http://snomed.info/sct
code |  | 1..1 | code | Symbol in syntax defined by the system Fixed Value: 53958007
data | S | 1..1 | BackboneElement | The organ or tissue that is the target of the donation decision
meaning |  | 1..1 | code | instance | related | dependents | authoredby Fixed Value: instance
reference | S | 1..1 | Reference(ADHA Organ or Tissue for Donation BodyStructure) | The actual data reference
reference |  | 1..1 | string | Literal reference, Relative, internal or absolute URL
Documentation for this format

Name | Flags | Card. | Type | Description & Constraints
--- | --- | --- | --- | ---
Consent | C | 0..* | Consent | Record of organ and tissue donation decision held by the Australian Organ Donor Register
id | Σ | 0..1 | id | Logical id of this artifact
meta | Σ | 0..1 | Meta | Metadata about the resource
implicitRules | ?!Σ | 0..1 | uri | A set of rules under which this content was created
language |  | 0..1 | code | Language of the resource content Binding: CommonLanguages (preferred): A human language.
Additional Bindings | Purpose
AllLanguages | Max Binding
text |  | 0..1 | Narrative | Text summary of the resource, for human interpretation
contained |  | 0..* | Resource | Contained, inline Resources
Slices for extension |  | 0..* | Extension | Extension Slice: Unordered, Open by value:url
dateInitialRegistration | S | 0..1 | dateTime | Date the individual first registered URL: http://ns.electronichealth.net.au/fhir/StructureDefinition/dh-date-initial-registration-1
modifierExtension | ?! | 0..* | Extension | Extensions that cannot be ignored
identifier | S Σ | 1..* | Identifier | Identifier for this record (external references) Example General: {"system":"urn:ietf:rfc:3986","value":"Local eCMS identifier"}
status | ?!S Σ | 1..1 | code | draft | proposed | active | rejected | inactive | entered-in-error Binding: ConsentState (required): Indicates the state of the consent. Fixed Value: active
scope | ?!S Σ | 1..1 | CodeableConcept | Which of the four areas this resource covers (extensible) Binding: ConsentScopeCodes (extensible): The four anticipated uses for the Consent Resource. Required Pattern: At least the following
id |  | 0..1 | id | Unique id for inter-element referencing
extension |  | 0..* | Extension | Additional content defined by implementations
coding |  | 1..* | Coding | Code defined by a terminology system Fixed Value: (complex)
id |  | 0..1 | id | Unique id for inter-element referencing
extension |  | 0..* | Extension | Additional content defined by implementations
system |  | 1..1 | uri | Identity of the terminology system Fixed Value: http://terminology.hl7.org/CodeSystem/consentscope
version |  | 0..1 | string | Version of the system - if relevant
code |  | 1..1 | code | Symbol in syntax defined by the system Fixed Value: adr
display |  | 0..1 | string | Representation defined by the system
userSelected |  | 0..1 | boolean | If this coding was chosen directly by the user
text |  | 0..1 | string | Plain text representation of the concept
Slices for category | S Σ | 1..* | CodeableConcept | Classification of the consent statement - for indexing/retrieval Slice: Unordered, Open by pattern:$this Binding: ConsentCategoryCodes (extensible): A classification of the type of consents found in a consent statement.
category:health | Σ | 1..1 | CodeableConcept | Consent for healthcare service, procedure, or activity Binding: ConsentCategoryCodes (extensible): A classification of the type of consents found in a consent statement. Required Pattern: At least the following
id |  | 0..1 | id | Unique id for inter-element referencing
extension |  | 0..* | Extension | Additional content defined by implementations
coding |  | 1..* | Coding | Code defined by a terminology system Fixed Value: (complex)
id |  | 0..1 | id | Unique id for inter-element referencing
extension |  | 0..* | Extension | Additional content defined by implementations
system |  | 1..1 | uri | Identity of the terminology system Fixed Value: http://loinc.org
version |  | 0..1 | string | Version of the system - if relevant
code |  | 1..1 | code | Symbol in syntax defined by the system Fixed Value: 59284-0
display |  | 0..1 | string | Representation defined by the system
userSelected |  | 0..1 | boolean | If this coding was chosen directly by the user
text |  | 0..1 | string | Plain text representation of the concept
category:aodr | Σ | 1..1 | CodeableConcept | Organ donation consent Binding: ConsentCategoryCodes (extensible): A classification of the type of consents found in a consent statement. Required Pattern: At least the following
id |  | 0..1 | id | Unique id for inter-element referencing
extension |  | 0..* | Extension | Additional content defined by implementations
coding |  | 1..* | Coding | Code defined by a terminology system Fixed Value: (complex)
id |  | 0..1 | id | Unique id for inter-element referencing
extension |  | 0..* | Extension | Additional content defined by implementations
system |  | 1..1 | uri | Identity of the terminology system Fixed Value: http://loinc.org
version |  | 0..1 | string | Version of the system - if relevant
code |  | 1..1 | code | Symbol in syntax defined by the system Fixed Value: 64300-7
display |  | 0..1 | string | Representation defined by the system
userSelected |  | 0..1 | boolean | If this coding was chosen directly by the user
text |  | 0..1 | string | Plain text representation of the concept
patient | S Σ C | 1..1 | Reference(ADHA Core Patient) | Who the consent applies to inv-dh-cons-aodr-01: At least reference or a valid identifier shall be present
dateTime | S Σ C | 1..1 | dateTime | When this Consent was created or indexed inv-dh-cons-aodr-03: Date shall be at least to day
performer | S Σ C | 1..1 | Reference(ADHA Core Patient) | Grantor of consent inv-dh-cons-aodr-04: At least reference or a valid identifier shall be present
organization | S Σ C | 1..1 | Reference(ADHA Core Organization) | Custodian of the consent inv-dh-cons-aodr-05: At least reference or display or a valid identifier shall be present
source[x] | Σ | 0..1 |  | Source from which this consent is taken
sourceAttachment |  |  | Attachment |
sourceReference |  |  | Reference(Consent | DocumentReference | Contract | QuestionnaireResponse) |
policy | S | 1..1 | BackboneElement | Australian Organ Donor Register
id |  | 0..1 | string | Unique id for inter-element referencing
extension |  | 0..* | Extension | Additional content defined by implementations
modifierExtension | ?!Σ | 0..* | Extension | Extensions that cannot be ignored even if unrecognized
authority | S C | 0..1 | uri | Enforcement source for policy Fixed Value: http://australianorgandonorregister.gov.au
uri | S C | 1..1 | uri | Specific policy covered by this consent Fixed Value: http://www.australianorgandonorregister.gov.au/aodr
policyRule | Σ C | 0..1 | CodeableConcept | Regulation that this consents to Binding: ConsentPolicyRuleCodes (extensible): Regulatory policy examples.
verification | Σ | 0..* | BackboneElement | Consent Verified by patient or family
id |  | 0..1 | string | Unique id for inter-element referencing
extension |  | 0..* | Extension | Additional content defined by implementations
modifierExtension | ?!Σ | 0..* | Extension | Extensions that cannot be ignored even if unrecognized
verified | Σ | 1..1 | boolean | Has been verified
verifiedWith |  | 0..1 | Reference(Patient | RelatedPerson) | Person who verified
verificationDate |  | 0..1 | dateTime | When consent verified
provision | S Σ C | 1..1 | BackboneElement | Individual's decision about donation inv-dh-cons-aodr-02: Specific provisions shall be specified if the individual is willing to donate, otherwise prohibited
id |  | 0..1 | string | Unique id for inter-element referencing
extension |  | 0..* | Extension | Additional content defined by implementations
modifierExtension | ?!Σ | 0..* | Extension | Extensions that cannot be ignored even if unrecognized
type | S Σ | 1..1 | code | deny | permit Binding: ConsentProvisionType (required): How a rule statement is applied, such as adding additional consent or removing consent.
period | Σ | 0..1 | Period | Timeframe for this rule
actor |  | 0..* | BackboneElement | Who|what controlled by this rule (or group, by role)
id |  | 0..1 | string | Unique id for inter-element referencing
extension |  | 0..* | Extension | Additional content defined by implementations
modifierExtension | ?!Σ | 0..* | Extension | Extensions that cannot be ignored even if unrecognized
role |  | 1..1 | CodeableConcept | How the actor is involved Binding: SecurityRoleType (extensible): How an actor is involved in the consent considerations.
reference |  | 1..1 | Reference(Device | Group | CareTeam | Organization | Patient | Practitioner | RelatedPerson | PractitionerRole) | Resource for the actor (or group, by role)
action | S Σ | 1..1 | CodeableConcept | Removal of organ or tissue for donation Binding: ConsentActionCodes (example): Detailed codes for the consent action. Required Pattern: At least the following
id |  | 0..1 | id | Unique id for inter-element referencing
extension |  | 0..* | Extension | Additional content defined by implementations
coding |  | 1..* | Coding | Code defined by a terminology system Fixed Value: (complex)
id |  | 0..1 | id | Unique id for inter-element referencing
extension |  | 0..* | Extension | Additional content defined by implementations
system |  | 1..1 | uri | Identity of the terminology system Fixed Value: http://snomed.info/sct
version |  | 0..1 | string | Version of the system - if relevant
code |  | 1..1 | code | Symbol in syntax defined by the system Fixed Value: 53958007
display |  | 0..1 | string | Representation defined by the system
userSelected |  | 0..1 | boolean | If this coding was chosen directly by the user
text |  | 0..1 | string | Plain text representation of the concept
securityLabel | Σ | 0..* | Coding | Security Labels that define affected resources Binding: All Security Labels (extensible): Security Labels from the Healthcare Privacy and Security Classification System.
purpose | Σ | 0..* | Coding | Context of activities covered by this rule Binding: PurposeOfUse (extensible): What purposes of use are controlled by this exception. If more than one label is specified, operations must have all the specified labels.
class | Σ | 0..* | Coding | e.g. Resource Type, Profile, CDA, etc. Binding: ConsentContentClass (extensible): The class (type) of information a consent rule covers.
code | Σ | 0..* | CodeableConcept | e.g. LOINC or SNOMED CT code, etc. in the content Binding: ConsentContentCodes (example): If this code is found in an instance, then the exception applies.
dataPeriod | Σ | 0..1 | Period | Timeframe for data controlled by this rule
data | Σ | 0..* | BackboneElement | Data controlled by this rule
id |  | 0..1 | string | Unique id for inter-element referencing
extension |  | 0..* | Extension | Additional content defined by implementations
modifierExtension | ?!Σ | 0..* | Extension | Extensions that cannot be ignored even if unrecognized
meaning | Σ | 1..1 | code | instance | related | dependents | authoredby Binding: ConsentDataMeaning (required): How a resource reference is interpreted when testing consent restrictions.
reference | Σ | 1..1 | Reference(Resource) | The actual data reference
provision | S | 0..* | BackboneElement | Individual's decision about donation of specific organ or tissue
id |  | 0..1 | string | Unique id for inter-element referencing
extension |  | 0..* | Extension | Additional content defined by implementations
modifierExtension | ?!Σ | 0..* | Extension | Extensions that cannot be ignored even if unrecognized
type | S Σ | 1..1 | code | deny | permit Binding: ConsentProvisionType (required): How a rule statement is applied, such as adding additional consent or removing consent.
period | Σ | 0..1 | Period | Timeframe for this rule
actor |  | 0..* | BackboneElement | Who|what controlled by this rule (or group, by role)
id |  | 0..1 | string | Unique id for inter-element referencing
extension |  | 0..* | Extension | Additional content defined by implementations
modifierExtension | ?!Σ | 0..* | Extension | Extensions that cannot be ignored even if unrecognized
role |  | 1..1 | CodeableConcept | How the actor is involved Binding: SecurityRoleType (extensible): How an actor is involved in the consent considerations.
reference |  | 1..1 | Reference(Device | Group | CareTeam | Organization | Patient | Practitioner | RelatedPerson | PractitionerRole) | Resource for the actor (or group, by role)
action | S Σ | 1..1 | CodeableConcept | Removal of organ or tissue for donation Binding: ConsentActionCodes (example): Detailed codes for the consent action. Required Pattern: At least the following
id |  | 0..1 | id | Unique id for inter-element referencing
extension |  | 0..* | Extension | Additional content defined by implementations
coding |  | 1..* | Coding | Code defined by a terminology system Fixed Value: (complex)
id |  | 0..1 | id | Unique id for inter-element referencing
extension |  | 0..* | Extension | Additional content defined by implementations
system |  | 1..1 | uri | Identity of the terminology system Fixed Value: http://snomed.info/sct
version |  | 0..1 | string | Version of the system - if relevant
code |  | 1..1 | code | Symbol in syntax defined by the system Fixed Value: 53958007
display |  | 0..1 | string | Representation defined by the system
userSelected |  | 0..1 | boolean | If this coding was chosen directly by the user
text |  | 0..1 | string | Plain text representation of the concept
securityLabel | Σ | 0..* | Coding | Security Labels that define affected resources Binding: All Security Labels (extensible): Security Labels from the Healthcare Privacy and Security Classification System.
purpose | Σ | 0..* | Coding | Context of activities covered by this rule Binding: PurposeOfUse (extensible): What purposes of use are controlled by this exception. If more than one label is specified, operations must have all the specified labels.
class | Σ | 0..* | Coding | e.g. Resource Type, Profile, CDA, etc. Binding: ConsentContentClass (extensible): The class (type) of information a consent rule covers.
code | Σ | 0..* | CodeableConcept | e.g. LOINC or SNOMED CT code, etc. in the content Binding: ConsentContentCodes (example): If this code is found in an instance, then the exception applies.
dataPeriod | Σ | 0..1 | Period | Timeframe for data controlled by this rule
data | S Σ | 1..1 | BackboneElement | The organ or tissue that is the target of the donation decision
id |  | 0..1 | string | Unique id for inter-element referencing
extension |  | 0..* | Extension | Additional content defined by implementations
modifierExtension | ?!Σ | 0..* | Extension | Extensions that cannot be ignored even if unrecognized
meaning | Σ | 1..1 | code | instance | related | dependents | authoredby Binding: ConsentDataMeaning (required): How a resource reference is interpreted when testing consent restrictions. Fixed Value: instance
reference | S Σ | 1..1 | Reference(ADHA Organ or Tissue for Donation BodyStructure) | The actual data reference
id |  | 0..1 | string | Unique id for inter-element referencing
extension |  | 0..* | Extension | Additional content defined by implementations Slice: Unordered, Open by value:url
reference | Σ C | 1..1 | string | Literal reference, Relative, internal or absolute URL
type | Σ | 0..1 | uri | Type the reference refers to (e.g. "Patient") Binding: ResourceType (extensible): Aa resource (or, for logical models, the URI of the logical model).
identifier | Σ | 0..1 | Identifier | Logical reference, when literal reference is not known
display | Σ | 0..1 | string | Text alternative for the resource
provision |  | 0..* | See provision (Consent) | Nested Exception Rules
Documentation for this format

Differential View

Name | Flags | Card. | Type | Description & Constraints
--- | --- | --- | --- | ---
Consent |  | 0..* | Consent | Record of organ and tissue donation decision held by the Australian Organ Donor Register
Slices for extension |  | 0..* | Extension | Extension Slice: Unordered, Open by value:url
dateInitialRegistration | S | 0..1 | dateTime | Date the individual first registered URL: http://ns.electronichealth.net.au/fhir/StructureDefinition/dh-date-initial-registration-1
identifier | S | 1..* | Identifier | Identifier for this record (external references)
status | S | 1..1 | code | draft | proposed | active | rejected | inactive | entered-in-error Fixed Value: active
scope | S | 1..1 | CodeableConcept | Which of the four areas this resource covers (extensible) Required Pattern: At least the following
coding |  | 1..* | Coding | Code defined by a terminology system Fixed Value: (complex)
system |  | 1..1 | uri | Identity of the terminology system Fixed Value: http://terminology.hl7.org/CodeSystem/consentscope
code |  | 1..1 | code | Symbol in syntax defined by the system Fixed Value: adr
Slices for category | S | 1..* | CodeableConcept | Classification of the consent statement - for indexing/retrieval Slice: Unordered, Open by pattern:$this
category:health |  | 1..1 | CodeableConcept | Consent for healthcare service, procedure, or activity Required Pattern: At least the following
coding |  | 1..* | Coding | Code defined by a terminology system Fixed Value: (complex)
system |  | 1..1 | uri | Identity of the terminology system Fixed Value: http://loinc.org
code |  | 1..1 | code | Symbol in syntax defined by the system Fixed Value: 59284-0
category:aodr |  | 1..1 | CodeableConcept | Organ donation consent Required Pattern: At least the following
coding |  | 1..* | Coding | Code defined by a terminology system Fixed Value: (complex)
system |  | 1..1 | uri | Identity of the terminology system Fixed Value: http://loinc.org
code |  | 1..1 | code | Symbol in syntax defined by the system Fixed Value: 64300-7
patient | S C | 1..1 | Reference(ADHA Core Patient) | Who the consent applies to inv-dh-cons-aodr-01: At least reference or a valid identifier shall be present
dateTime | S C | 1..1 | dateTime | When this Consent was created or indexed inv-dh-cons-aodr-03: Date shall be at least to day
performer | S C | 1..1 | Reference(ADHA Core Patient) | Grantor of consent inv-dh-cons-aodr-04: At least reference or a valid identifier shall be present
organization | S C | 1..1 | Reference(ADHA Core Organization) | Custodian of the consent inv-dh-cons-aodr-05: At least reference or display or a valid identifier shall be present
policy | S | 1..1 | BackboneElement | Australian Organ Donor Register
authority | S | 0..1 | uri | Enforcement source for policy Fixed Value: http://australianorgandonorregister.gov.au
uri | S | 1..1 | uri | Specific policy covered by this consent Fixed Value: http://www.australianorgandonorregister.gov.au/aodr
provision | S C | 1..1 | BackboneElement | Individual's decision about donation inv-dh-cons-aodr-02: Specific provisions shall be specified if the individual is willing to donate, otherwise prohibited
type | S | 1..1 | code | deny | permit
action | S | 1..1 | CodeableConcept | Removal of organ or tissue for donation Required Pattern: At least the following
coding |  | 1..* | Coding | Code defined by a terminology system Fixed Value: (complex)
system |  | 1..1 | uri | Identity of the terminology system Fixed Value: http://snomed.info/sct
code |  | 1..1 | code | Symbol in syntax defined by the system Fixed Value: 53958007
provision | S | 0..* | BackboneElement | Individual's decision about donation of specific organ or tissue
type | S | 1..1 | code | deny | permit
action | S | 1..1 | CodeableConcept | Removal of organ or tissue for donation Required Pattern: At least the following
coding |  | 1..* | Coding | Code defined by a terminology system Fixed Value: (complex)
system |  | 1..1 | uri | Identity of the terminology system Fixed Value: http://snomed.info/sct
code |  | 1..1 | code | Symbol in syntax defined by the system Fixed Value: 53958007
data | S | 1..1 | BackboneElement | The organ or tissue that is the target of the donation decision
meaning |  | 1..1 | code | instance | related | dependents | authoredby Fixed Value: instance
reference | S | 1..1 | Reference(ADHA Organ or Tissue for Donation BodyStructure) | The actual data reference
reference |  | 1..1 | string | Literal reference, Relative, internal or absolute URL
Documentation for this format

Snapshot View

Name | Flags | Card. | Type | Description & Constraints
--- | --- | --- | --- | ---
Consent | C | 0..* | Consent | Record of organ and tissue donation decision held by the Australian Organ Donor Register
id | Σ | 0..1 | id | Logical id of this artifact
meta | Σ | 0..1 | Meta | Metadata about the resource
implicitRules | ?!Σ | 0..1 | uri | A set of rules under which this content was created
language |  | 0..1 | code | Language of the resource content Binding: CommonLanguages (preferred): A human language.
Additional Bindings | Purpose
AllLanguages | Max Binding
text |  | 0..1 | Narrative | Text summary of the resource, for human interpretation
contained |  | 0..* | Resource | Contained, inline Resources
Slices for extension |  | 0..* | Extension | Extension Slice: Unordered, Open by value:url
dateInitialRegistration | S | 0..1 | dateTime | Date the individual first registered URL: http://ns.electronichealth.net.au/fhir/StructureDefinition/dh-date-initial-registration-1
modifierExtension | ?! | 0..* | Extension | Extensions that cannot be ignored
identifier | S Σ | 1..* | Identifier | Identifier for this record (external references) Example General: {"system":"urn:ietf:rfc:3986","value":"Local eCMS identifier"}
status | ?!S Σ | 1..1 | code | draft | proposed | active | rejected | inactive | entered-in-error Binding: ConsentState (required): Indicates the state of the consent. Fixed Value: active
scope | ?!S Σ | 1..1 | CodeableConcept | Which of the four areas this resource covers (extensible) Binding: ConsentScopeCodes (extensible): The four anticipated uses for the Consent Resource. Required Pattern: At least the following
id |  | 0..1 | id | Unique id for inter-element referencing
extension |  | 0..* | Extension | Additional content defined by implementations
coding |  | 1..* | Coding | Code defined by a terminology system Fixed Value: (complex)
id |  | 0..1 | id | Unique id for inter-element referencing
extension |  | 0..* | Extension | Additional content defined by implementations
system |  | 1..1 | uri | Identity of the terminology system Fixed Value: http://terminology.hl7.org/CodeSystem/consentscope
version |  | 0..1 | string | Version of the system - if relevant
code |  | 1..1 | code | Symbol in syntax defined by the system Fixed Value: adr
display |  | 0..1 | string | Representation defined by the system
userSelected |  | 0..1 | boolean | If this coding was chosen directly by the user
text |  | 0..1 | string | Plain text representation of the concept
Slices for category | S Σ | 1..* | CodeableConcept | Classification of the consent statement - for indexing/retrieval Slice: Unordered, Open by pattern:$this Binding: ConsentCategoryCodes (extensible): A classification of the type of consents found in a consent statement.
category:health | Σ | 1..1 | CodeableConcept | Consent for healthcare service, procedure, or activity Binding: ConsentCategoryCodes (extensible): A classification of the type of consents found in a consent statement. Required Pattern: At least the following
id |  | 0..1 | id | Unique id for inter-element referencing
extension |  | 0..* | Extension | Additional content defined by implementations
coding |  | 1..* | Coding | Code defined by a terminology system Fixed Value: (complex)
id |  | 0..1 | id | Unique id for inter-element referencing
extension |  | 0..* | Extension | Additional content defined by implementations
system |  | 1..1 | uri | Identity of the terminology system Fixed Value: http://loinc.org
version |  | 0..1 | string | Version of the system - if relevant
code |  | 1..1 | code | Symbol in syntax defined by the system Fixed Value: 59284-0
display |  | 0..1 | string | Representation defined by the system
userSelected |  | 0..1 | boolean | If this coding was chosen directly by the user
text |  | 0..1 | string | Plain text representation of the concept
category:aodr | Σ | 1..1 | CodeableConcept | Organ donation consent Binding: ConsentCategoryCodes (extensible): A classification of the type of consents found in a consent statement. Required Pattern: At least the following
id |  | 0..1 | id | Unique id for inter-element referencing
extension |  | 0..* | Extension | Additional content defined by implementations
coding |  | 1..* | Coding | Code defined by a terminology system Fixed Value: (complex)
id |  | 0..1 | id | Unique id for inter-element referencing
extension |  | 0..* | Extension | Additional content defined by implementations
system |  | 1..1 | uri | Identity of the terminology system Fixed Value: http://loinc.org
version |  | 0..1 | string | Version of the system - if relevant
code |  | 1..1 | code | Symbol in syntax defined by the system Fixed Value: 64300-7
display |  | 0..1 | string | Representation defined by the system
userSelected |  | 0..1 | boolean | If this coding was chosen directly by the user
text |  | 0..1 | string | Plain text representation of the concept
patient | S Σ C | 1..1 | Reference(ADHA Core Patient) | Who the consent applies to inv-dh-cons-aodr-01: At least reference or a valid identifier shall be present
dateTime | S Σ C | 1..1 | dateTime | When this Consent was created or indexed inv-dh-cons-aodr-03: Date shall be at least to day
performer | S Σ C | 1..1 | Reference(ADHA Core Patient) | Grantor of consent inv-dh-cons-aodr-04: At least reference or a valid identifier shall be present
organization | S Σ C | 1..1 | Reference(ADHA Core Organization) | Custodian of the consent inv-dh-cons-aodr-05: At least reference or display or a valid identifier shall be present
source[x] | Σ | 0..1 |  | Source from which this consent is taken
sourceAttachment |  |  | Attachment |
sourceReference |  |  | Reference(Consent | DocumentReference | Contract | QuestionnaireResponse) |
policy | S | 1..1 | BackboneElement | Australian Organ Donor Register
id |  | 0..1 | string | Unique id for inter-element referencing
extension |  | 0..* | Extension | Additional content defined by implementations
modifierExtension | ?!Σ | 0..* | Extension | Extensions that cannot be ignored even if unrecognized
authority | S C | 0..1 | uri | Enforcement source for policy Fixed Value: http://australianorgandonorregister.gov.au
uri | S C | 1..1 | uri | Specific policy covered by this consent Fixed Value: http://www.australianorgandonorregister.gov.au/aodr
policyRule | Σ C | 0..1 | CodeableConcept | Regulation that this consents to Binding: ConsentPolicyRuleCodes (extensible): Regulatory policy examples.
verification | Σ | 0..* | BackboneElement | Consent Verified by patient or family
id |  | 0..1 | string | Unique id for inter-element referencing
extension |  | 0..* | Extension | Additional content defined by implementations
modifierExtension | ?!Σ | 0..* | Extension | Extensions that cannot be ignored even if unrecognized
verified | Σ | 1..1 | boolean | Has been verified
verifiedWith |  | 0..1 | Reference(Patient | RelatedPerson) | Person who verified
verificationDate |  | 0..1 | dateTime | When consent verified
provision | S Σ C | 1..1 | BackboneElement | Individual's decision about donation inv-dh-cons-aodr-02: Specific provisions shall be specified if the individual is willing to donate, otherwise prohibited
id |  | 0..1 | string | Unique id for inter-element referencing
extension |  | 0..* | Extension | Additional content defined by implementations
modifierExtension | ?!Σ | 0..* | Extension | Extensions that cannot be ignored even if unrecognized
type | S Σ | 1..1 | code | deny | permit Binding: ConsentProvisionType (required): How a rule statement is applied, such as adding additional consent or removing consent.
period | Σ | 0..1 | Period | Timeframe for this rule
actor |  | 0..* | BackboneElement | Who|what controlled by this rule (or group, by role)
id |  | 0..1 | string | Unique id for inter-element referencing
extension |  | 0..* | Extension | Additional content defined by implementations
modifierExtension | ?!Σ | 0..* | Extension | Extensions that cannot be ignored even if unrecognized
role |  | 1..1 | CodeableConcept | How the actor is involved Binding: SecurityRoleType (extensible): How an actor is involved in the consent considerations.
reference |  | 1..1 | Reference(Device | Group | CareTeam | Organization | Patient | Practitioner | RelatedPerson | PractitionerRole) | Resource for the actor (or group, by role)
action | S Σ | 1..1 | CodeableConcept | Removal of organ or tissue for donation Binding: ConsentActionCodes (example): Detailed codes for the consent action. Required Pattern: At least the following
id |  | 0..1 | id | Unique id for inter-element referencing
extension |  | 0..* | Extension | Additional content defined by implementations
coding |  | 1..* | Coding | Code defined by a terminology system Fixed Value: (complex)
id |  | 0..1 | id | Unique id for inter-element referencing
extension |  | 0..* | Extension | Additional content defined by implementations
system |  | 1..1 | uri | Identity of the terminology system Fixed Value: http://snomed.info/sct
version |  | 0..1 | string | Version of the system - if relevant
code |  | 1..1 | code | Symbol in syntax defined by the system Fixed Value: 53958007
display |  | 0..1 | string | Representation defined by the system
userSelected |  | 0..1 | boolean | If this coding was chosen directly by the user
text |  | 0..1 | string | Plain text representation of the concept
securityLabel | Σ | 0..* | Coding | Security Labels that define affected resources Binding: All Security Labels (extensible): Security Labels from the Healthcare Privacy and Security Classification System.
purpose | Σ | 0..* | Coding | Context of activities covered by this rule Binding: PurposeOfUse (extensible): What purposes of use are controlled by this exception. If more than one label is specified, operations must have all the specified labels.
class | Σ | 0..* | Coding | e.g. Resource Type, Profile, CDA, etc. Binding: ConsentContentClass (extensible): The class (type) of information a consent rule covers.
code | Σ | 0..* | CodeableConcept | e.g. LOINC or SNOMED CT code, etc. in the content Binding: ConsentContentCodes (example): If this code is found in an instance, then the exception applies.
dataPeriod | Σ | 0..1 | Period | Timeframe for data controlled by this rule
data | Σ | 0..* | BackboneElement | Data controlled by this rule
id |  | 0..1 | string | Unique id for inter-element referencing
extension |  | 0..* | Extension | Additional content defined by implementations
modifierExtension | ?!Σ | 0..* | Extension | Extensions that cannot be ignored even if unrecognized
meaning | Σ | 1..1 | code | instance | related | dependents | authoredby Binding: ConsentDataMeaning (required): How a resource reference is interpreted when testing consent restrictions.
reference | Σ | 1..1 | Reference(Resource) | The actual data reference
provision | S | 0..* | BackboneElement | Individual's decision about donation of specific organ or tissue
id |  | 0..1 | string | Unique id for inter-element referencing
extension |  | 0..* | Extension | Additional content defined by implementations
modifierExtension | ?!Σ | 0..* | Extension | Extensions that cannot be ignored even if unrecognized
type | S Σ | 1..1 | code | deny | permit Binding: ConsentProvisionType (required): How a rule statement is applied, such as adding additional consent or removing consent.
period | Σ | 0..1 | Period | Timeframe for this rule
actor |  | 0..* | BackboneElement | Who|what controlled by this rule (or group, by role)
id |  | 0..1 | string | Unique id for inter-element referencing
extension |  | 0..* | Extension | Additional content defined by implementations
modifierExtension | ?!Σ | 0..* | Extension | Extensions that cannot be ignored even if unrecognized
role |  | 1..1 | CodeableConcept | How the actor is involved Binding: SecurityRoleType (extensible): How an actor is involved in the consent considerations.
reference |  | 1..1 | Reference(Device | Group | CareTeam | Organization | Patient | Practitioner | RelatedPerson | PractitionerRole) | Resource for the actor (or group, by role)
action | S Σ | 1..1 | CodeableConcept | Removal of organ or tissue for donation Binding: ConsentActionCodes (example): Detailed codes for the consent action. Required Pattern: At least the following
id |  | 0..1 | id | Unique id for inter-element referencing
extension |  | 0..* | Extension | Additional content defined by implementations
coding |  | 1..* | Coding | Code defined by a terminology system Fixed Value: (complex)
id |  | 0..1 | id | Unique id for inter-element referencing
extension |  | 0..* | Extension | Additional content defined by implementations
system |  | 1..1 | uri | Identity of the terminology system Fixed Value: http://snomed.info/sct
version |  | 0..1 | string | Version of the system - if relevant
code |  | 1..1 | code | Symbol in syntax defined by the system Fixed Value: 53958007
display |  | 0..1 | string | Representation defined by the system
userSelected |  | 0..1 | boolean | If this coding was chosen directly by the user
text |  | 0..1 | string | Plain text representation of the concept
securityLabel | Σ | 0..* | Coding | Security Labels that define affected resources Binding: All Security Labels (extensible): Security Labels from the Healthcare Privacy and Security Classification System.
purpose | Σ | 0..* | Coding | Context of activities covered by this rule Binding: PurposeOfUse (extensible): What purposes of use are controlled by this exception. If more than one label is specified, operations must have all the specified labels.
class | Σ | 0..* | Coding | e.g. Resource Type, Profile, CDA, etc. Binding: ConsentContentClass (extensible): The class (type) of information a consent rule covers.
code | Σ | 0..* | CodeableConcept | e.g. LOINC or SNOMED CT code, etc. in the content Binding: ConsentContentCodes (example): If this code is found in an instance, then the exception applies.
dataPeriod | Σ | 0..1 | Period | Timeframe for data controlled by this rule
data | S Σ | 1..1 | BackboneElement | The organ or tissue that is the target of the donation decision
id |  | 0..1 | string | Unique id for inter-element referencing
extension |  | 0..* | Extension | Additional content defined by implementations
modifierExtension | ?!Σ | 0..* | Extension | Extensions that cannot be ignored even if unrecognized
meaning | Σ | 1..1 | code | instance | related | dependents | authoredby Binding: ConsentDataMeaning (required): How a resource reference is interpreted when testing consent restrictions. Fixed Value: instance
reference | S Σ | 1..1 | Reference(ADHA Organ or Tissue for Donation BodyStructure) | The actual data reference
id |  | 0..1 | string | Unique id for inter-element referencing
extension |  | 0..* | Extension | Additional content defined by implementations Slice: Unordered, Open by value:url
reference | Σ C | 1..1 | string | Literal reference, Relative, internal or absolute URL
type | Σ | 0..1 | uri | Type the reference refers to (e.g. "Patient") Binding: ResourceType (extensible): Aa resource (or, for logical models, the URI of the logical model).
identifier | Σ | 0..1 | Identifier | Logical reference, when literal reference is not known
display | Σ | 0..1 | string | Text alternative for the resource
provision |  | 0..* | See provision (Consent) | Nested Exception Rules
Documentation for this format

Downloads: StructureDefinition: (XML, JSON), Schema: XML Schematron

#### Terminology Bindings

Path | Conformance | ValueSet / Code
Consent.language | preferred | CommonLanguages
Additional Bindings | Purpose
AllLanguages | Max Binding
Consent.status | required | Fixed Value: active
Consent.scope | extensible | Pattern: adr
Consent.category | extensible | ConsentCategoryCodes
Consent.category:health | extensible | Pattern: LOINC code 59284-0
Consent.category:aodr | extensible | Pattern: LOINC code 64300-7
Consent.policyRule | extensible | ConsentPolicyRuleCodes
Consent.provision.type | required | ConsentProvisionType
Consent.provision.actor.role | extensible | SecurityRoleType
Consent.provision.action | example | Pattern: SNOMED CT code 53958007
Consent.provision.securityLabel | extensible | All Security Labels
Consent.provision.purpose | extensible | PurposeOfUse
Consent.provision.class | extensible | ConsentContentClass
Consent.provision.code | example | ConsentContentCodes (a valid code from LOINC)
Consent.provision.data.meaning | required | ConsentDataMeaning
Consent.provision.provision.type | required | ConsentProvisionType
Consent.provision.provision.actor.role | extensible | SecurityRoleType
Consent.provision.provision.action | example | Pattern: SNOMED CT code 53958007
Consent.provision.provision.securityLabel | extensible | All Security Labels
Consent.provision.provision.purpose | extensible | PurposeOfUse
Consent.provision.provision.class | extensible | ConsentContentClass
Consent.provision.provision.code | example | ConsentContentCodes (a valid code from LOINC)
Consent.provision.provision.data.meaning | required | Fixed Value: instance
Consent.provision.provision.data.reference.type | extensible | ResourceType

#### Search Parameters

None defined.